He told me that no one knows the cause, that its not contagious, its not a cancer, its not an infection, its not inherited and its not genetic. But he didn't say what it was.

He told me that it had affected my lungs (as if I didn't already know that) and could affect my skin, my eyes, my heart and just about any part of my body that it wanted to, and we would have to wait and see how it affected me.

I felt better when he said that it often goes away without any treatment, and felt worse when he told me that he was pretty certain that my sarcoidosis would not get better on its own.

My spirits recovered some when he said there was treatment, but fell even lower when he told me that the treatment could make me gain weight (a lot of it) and cause damage to my eyes, bones, and skin, and could cause infections, diabetes and hypertension.

Are these the "wonders of modern medicine" that others write about.

Robert, 37
On treatment and wondering

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